Authors :
Presenting Author: Thometta Cozart, MPH, MCHES – Epilepsy Foundation
Cheryl Houston, Associates Degree – Epilepsy Foundation
Shel Lessington, MPH, CHES – Epilepsy Foundation of America
Brian Gilchrist, PhD, MPH – Epilepsy Foundation of America
Rationale:
Determinants of health have been categorized as social, structural, political and ethical in nature. Regardless of classification, these factors and their associated systems have a powerful impact on the health of populations in the U.S. Education is a core determinant and a vital component of the ability to live a healthier, longer life as this session will explore. Education discrimination remains one of the most significant issues addressed through the Epilepsy Foundation’s Legal Defense Fund. Studies have shown that more than half of U.S. adults living with active epilepsy have less than a high school diploma or GED, and many are less likely to pursue or earn college degrees. This statistic is a sobering reminder that stigma within educational systems, from K-12 schools to colleges and universities, is a real barrier for those living with epilepsy. Methods:
A skill building conference was implemented to build the capacity of the epilepsy workforce to address education-related disparities and to be better allies to young adults living with epilepsy attending college, there is a need for additional programming, resources, and partnerships. Through collaboration and partnership with a Historically Black Institution, the multi-day event was convened to equip those who work directly and indirectly with those living with epilepsy, as well as target a college campus community to increase their knowledge of how to support college-aged persons living with epilepsy. National partners such as the Association of Higher Education Accessibility and Disability and the National Student Nursing Association engaged with the epilepsy patient advocacy workforce to support their outreach to more colleges and universities. Results:
Nearly 150 participants attended the hybrid event. Pre- and post-training opportunities allowed for attendees to be trained in the newly launched Seizure Safe Schools Classroom Course to target K-12 teachers; become an instructor for Spanish Seizure First Aid (SFA) and/or become trained in SFA. Post-event surveys are conducted to assess impact and program satisfaction. Overall, 97.5% of participants had their expectations met, thought the event was useful, and would recommend it to others. More than130 individuals from the Howard University community were trained in SFA at the event.
Conclusions:
Featuring young adults to share their challenges and barriers to receiving epilepsy services, education and support were highlights of the event, and most attendees increased their efficiency to address education disparities and/or make referrals related to discrimination in educational settings.
Funding:
This effort is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.