Rationale:
The Epilepsy Leaning Healthcare System (ELHS) is a multicenter network focused on improving epilepsy outcomes. The aim of this report is to describe standardized epilepsy outcomes at one practice site of the ELHS.
Method:
We recorded standardized epilepsy outcomes with an Epilepsy Outcomes Form (EOF) adapted from ELHS measures at follow visits over 8 months for 849 unique patients. The data were entered into an IRB-approved REDCap database.
Results:
When the most recent seizure occurred and the frequency of seizures in relationship to the clinic visit are described in the Table (A. Timing, B. Frequency). Patient/caregiver reported seizures were better in 49.1%, the same for 39.6%, and worse for 7.3% of patients, with missing data for 4.0%. Treatment side effects were reported in 13.3% of patients, no side effects in 73.0%, uncertain or unknown in 7.9%, with missing data in 5.8%. Emergency Department visits occurred for 11.7% of all patients and hospitalizations for 6.1% of all patients.
Conclusion:
Through the ELHS network, we have begun to measure epilepsy outcomes in a standardized manner in clinical practice. This effort is being performed within a Quality Improvement Science framework with limitations present. Targeted interventions will be necessary to improve our ability to measure epilepsy outcomes.
Funding:
:none
FIGURES
Figure 1