Authors :
Presenting Author: Dina Abdalla, BS – Geisel School of Medicine at Dartmouth
Sarah Kaden, BA – Dartmouth Health
Kathryn Giordano, MPH – Dartmouth Health
Meredith Olenec, BA – Dartmouth Health
Jessica DeNaples, MPH – Dartmouth Health
Lisa Sackett, PhD – Dartmouth Health
Maureen Quigley, RN – Dartmouth Health
Stephanie Jennings, DNP – Dartmouth Health
Sana Ali, MD – Dartmouth Health
Ambereen Burhanuddin, MA – Dartmouth Health
Joanne Harris, MOT – Dartmouth Health
Maggie Ellison, BA – Dartmouth Health
Audrey Herrald, BA – Dartmouth Health
Doreen Guillette, CHW – Dartmouth Health
Suzanne Lenz, MA, CCRP – Dartmouth Health
Laura De Muro, MS, CHW – Dartmouth Health
Trina Dawson, BA – Dartmouth Health
Elaine Kiriakopoulos, MD, MPH, MSc – Dartmouth Health
Rationale:
Patient-centered care prioritizes patient’s ideas, beliefs, and concerns in care-related decision making. It leads to more effective care by improving treatment adherence, satisfaction, and long-term health outcomes. Despite this, there remains a significant gap in providing patient-centered care. Home-Based Self-Management and Cognitive Training Changes Lives (HOBSCOTCH) is an evidence-based program using problem-solving therapy strategies to improve self-management in people with epilepsy (PWE) experiencing cognitive challenges. The program is delivered by trained Cognitive Coaches individually and is participant driven, where PWE decide on the cognitive challenges to address and the solutions to be applied. This study aims to evaluate the degree of patient-centeredness experienced by participants in the HOBSCOTCH program using the CollaboRATE shared decision-making tool. Methods:
The HOBSCOTCH program was delivered by telehealth to PWE (n=237) over a 13-month period by 19 trained Cognitive Coaches (age: M=40.7, range=20-71; education: HS = 5.3%, BA/BS= 26.3%, master’s = 36.8%, professional = 21.1%, doctorate = 10.5%). Participants completed pre and post-program digital self-report questionnaires via REDCap (Research Electronic Data Capture) that included sociodemographic variables and a post-program questionnaire assessing patient-centeredness with the CollaboRATE measure, a validated tool used to measure shared-decision making. Participants are asked to rate three questions on a scale of 0 (no effort was made) to 9 (every effort was made), about the Coach’s ability to help them understand their epilepsy and cognitive issues, listen to what matters most, and include them in ESM program decisions. Data were summarized using descriptive statistics (Table 1) using Microsoft Excel.
Results:
ESM participants (n=224) resided in 40 US states (n=13 international). The cohort was 35% male and 63% female, aged from 16 to 83 yo (M=45.7, < 55=67%, ≥55=32%), 55% of participants had a bachelor’s degree or higher and 37% were employed. Participants rated their Coach’s effort to help them understand their epilepsy and cognition issues highly (M=8.14, SD=1.60), as well as their effort to listen to what matters most to the participant (M=8.37, SD=1.31) and to include what is important to the participant in choosing what to do next (M=8.33, SD=1.54; Figure 1).