Evaluation of Self-stigma in Patients with Epilepsy: Validation of the Self-stigma Scale to Spanish (ESSS-S)
Abstract number :
1.389
Submission category :
6. Cormorbidity (Somatic and Psychiatric)
Year :
2024
Submission ID :
858
Source :
www.aesnet.org
Presentation date :
12/7/2024 12:00:00 AM
Published date :
Authors :
Isabel Manzanares, NP – Hospital Clínic de Barcelona
Izumi Kuramochi, MD – Department of Psychiatry, Saitama Medical Center, Saitama Medical University, Saitama, Japan
Marta Olivera, MD – Hospital Clínic Barcelona
María Centeno, MD, PhD – Hospital Clínic de Barcelona
Mariam Khawaja, MD – Hospital Clínic de Barcelona
Luis pintor, MD, PhD – Hospital Clínic de Barcelona
Mar Carreño, MD, PhD – Hospital Clinic Barcelona
Presenting Author: Estefanía Conde-Blanco, MD, PhD, MSc – Hospital Clínic de Barcelona
Rationale: The Epilepsy Self-Stigma Scale (ESSS) has been developed in Japan for patients with epilepsy (PWE). We aimed to validate the scale in Spanish and examine its validity and reliability.
Methods: The transcultural adaptation of the ESSS was conducted using translation and back-translation, along with pilot testing and an expert panel review. An online questionnaire was used.
Results: A total of 260 out of 628 participants completed the questionnaires. A two-factor structure explained 61.3% of the total variance: factor 1 “perceived discrimination” with a Cronbach’s alpha of 0.80, and factor 2 “social isolation” with a Cronbach’s alpha of 0.75. The reliability of overall ESSS-S 8-item scores was high (Cronbach's alpha=0.74). Convergent validity demonstrated a significant correlation. Perceived discrimination scores were associated with higher anxiety and depression scores (r = 0.53/0.54; p< 0.001), lower self-esteem (-0.53; p< 0.001), and lower quality of life (r = -0.66; p< 0.001). Social isolation scores were associated with higher anxiety and depression scores (r = 0.41/0.33; p< 0.001), lower self-esteem (-0.34; p< 0.001), and lower quality of life (r = -0.35; p< 0.001). Temporal reliability was also tested, showing a test-retest ICC of 0.87.
Conclusions: The Spanish version of ESSS (ESSS-S) is a valid and reliable tool for the assessment of self-stigma among Spanish speakers.
Funding: This study was supported by “Patient Value in Epilepsy” UCB-SEEP 2023
Cormorbidity (Somatic and Psychiatric)