Abstracts

Assessing Epilepsy Self-management Program Implementation in Clinic and Community Settings

Abstract number : 1.164
Submission category : 17. Public Health
Year : 2024
Submission ID : 398
Source : www.aesnet.org
Presentation date : 12/7/2024 12:00:00 AM
Published date :

Authors :
Presenting Author: Erica Johnson, PhD, FAES, CRC – University of Washington

Mary Grace Asirot, MPH – University of Washington

Rationale: The Program of Active Consumer Engagement in Epilepsy Self-management (PACES) is an 8-session small group self-management intervention for adults with epilepsy (AWE) led by a trained epilepsy professional and peer dyad (Johnson et al., 2020). Results of PACES RCTs indicated high consumer satisfaction with the program as facilitated by a clinical psychologist and trained peer, supporting program efficacy (Fraser et al., 2015). PACES has been offered nationally to AWE since 2018. Emphasis is placed on training epilepsy professionals (Bachelor’s degree or higher and experience providing human services to AWE) and well-adjusted peers. Assessing PACES effectiveness involves participant satisfaction with the program.

Methods: All PACES facilitators completed 4 hours of didactic and interactive training aimed at program facilitation. Implementation support was provided monthly. All were oriented to formative research conditions, inclusion (e.g., 18 yrs of age+; presence of epileptic seizures; English literate) and exclusion criteria (e.g., uncontrolled psychiatric conditions; IQ < 70). Facilitators voluntarily submitted deidentified participant data in exchange for no-cost training and implementation support (T/IS). Data came from the program evaluation, which queried AWE for Likert ratings (1-5) of the value of the 8 sessions; and satisfaction with program aspects (e.g., format, leaders). The same data were collected from research participants during RCTs at UW. All items contribute independently; t-tests were conducted to compare implementation and clinical trial satisfaction ratings (Table 1).
Public Health