Abstracts

Rationale: Self-management helps people with epilepsy increase their self-confidence and better cope with their disease. Despite advances in the field, educational interventions for epilepsy self-management are still limited. The Management Information and Decision Support Epilepsy Tool ("MINDSET") is used in the clinic and facilitates healthcare providers in assisting patients to periodically assess, maintain, and/or improve their epilepsy self-management. The purpose of this study is to describe the usability and feasibility testing of the Spanish version of MINDSET with Spanish-speaking patients in Arizona and Texas. Methods: We translated MINDSET V4.1 into Spanish (Sp-MINDSET). A usability study was conducted with a sample of Spanish-speaking patients (n=8) in three neurology clinics in Arizona and Texas. Patients entered self-management data into MINDSET, the program compared responses to benchmarks, and identified areas for improvement. An action plan is developed that summarizes the patient's self-management status and the goals and strategies they selected for improvement. A usability rating scale and exit interview were used to collect quantitative and qualitative usability data after they completed MINDSET. The feasibility of Sp-MINDSET was tested with a sample of patients (n=40) at two neurology clinics in Texas and two in Arizona across two regular clinic visits. The patients completed MINDSET at each visit and discussed their action plan with their healthcare provider. A feasibility rating scale and exit interview were used to collect feasibility data after each visit. Results: In the usability study, patients were mostly female (62.5%), 19 to 70 years (x =45.4 years), Hispanic (100%), White (75%), with mean age of diagnosis at 13.3, and who reported seizures in the last 12 months (87.5%). Most (62.5%) reported more than one seizure per month and 25% had been seizure free in the last 12 months. Most had insurance (62.5%) or were on Medicaid (12.5%). Patients rated the time taken to use Sp-MINDSET as appropriate (75%) and mostly agreed that Sp-MINDSET was helpful (87.5%), enjoyable (62.5-100%), credible (100%), and understandable (100%). Patients perceived Sp-MINDSET as having a positive impact on thinking about and managing their epilepsy (75-100%) and understood the action plan (100%). Sp-MINDSET was perceived as minimally disruptive by the patients though the range of agreement for Sp-MINDSET's motivational appeal varied widely (25-75%). Participants expressed comfort with using Sp-MINDSET, felt it was thorough, and indicated that they would recommend it to other patients with epilepsy. The feasibility study results will be reported at the meeting. Conclusions: Positive usability findings suggest that tablet-based Spanish language decision support is acceptable for Spanish speaking Mexican-American patients with epilepsy. These results supported the feasibility testing of the tool. The findings from the feasibility study will be reported at the meeting. Funding: Centers for Disease Control and Prevention